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2024 Disability Health Action Summit Resources

The Arc of Pennsylvania held the 1st annual Disability Health Action Summit. The event took place on March 6th, 2024 at the Sheraton Harrisburg Hershey hotel. The theme of the day was Advancing Health Equity for People with Intellectual and Developmental Disabilities. This conference took a deeper dive into four major focus areas: (1) Education of Medical Professionals, (2) Elevating the Voices of Self Advocates, (3) Policy Changes, and (4) Advancing Dental Care. You’ll find the  presentation materials for each of the sessions by clicking the link above.

2023 December Health Disparities Lunch & Learn Series Resources

During the month of December 2023, we offered a series of Lunch and Learn sessions.  The goal of the series was to provide working models of the “how to”, as we focused on actionable items to make Pennsylvania a disability inclusive health care state.  During these sessions, speakers discussed topics related to the “Recommendations for Addressing COVID-19 Health Disparities Among the Disability Community” report published in August 2023 by the COVID-19 Health Disparities Statewide Leadership Task Force.  Each session provided an opportunity for participant Q&A. You’ll find the recordings, resources, and presentation materials for each of the sessions by clicking the link above.

e-Learning  Module: What is COVID-19?, Getting Tested, and Ways to Stay Safe

COVID-19 Resources         Recursos Para el COVID-19 

 

2022 Webinar: Dr. Cherpes and the Impact of COVID-19 on the Disability Community

The Office of Developmental Programs (ODP) Medical Director, Dr. Gregory Cherpes, shares information relating to the impact of COVID-19 on the disability community during our January 28, 2022 webinar.

2022 Webinar: The Office of PA Rural Health and Temple University

The PA Office of Rural Health for presenting “Reducing the Burden of COVID-19 in Rural Pennsylvania: Lessons from the Field” and Temple University for presenting an “Introduction to the Pennsylvania Inclusive Health Equity Collaborative” during our March 30, 2022 webinar.

Check to see if your COVID-19 tests’ expiration dates have been extended.

Many of the expiration dates on at home COVID-19 tests have been extended.  Before You Throw Out “Expired” Tests, check to see if the expiration date has been extended by clicking the link above. The FDA authorizes at-home rapid tests for 4 to 6 months at first and then extends the expiration dates after studies show that the tests still give accurate results when used after the initial expiration dates. Some tests are now authorized for use up to 21 months after production.

To find COVID-19 vaccine locations near you, text your ZIP code to 438829

Get free at-⁠home COVID-⁠19 tests

Every U.S. household is eligible to order 4 free at-home COVID-⁠19 tests. Get COVID-19 tests mailed directly to your home for FREE. Click on the link above or Call 1-800-232-0233 (TTY 1-888-720-7489).

Test for Free Options

New options are available for easy access to free COVID-19 testing this winter. Learn more by clicking on the link above or calling 1-800-232-0233 (TTY 1-888-720-7489).

New COVID-19 home tests for blind & low-vision individuals. Call 1-800-232-0233

The Biden-Harris Administration has launched a new initiative to expand the availability of at-home tests that are more accessible for people who are blind or have low vision.

Test to Treat Sites Call 1-800-232-0233

In March 2022, the Biden-Harris Administration launched a nationwide Test to Treat initiative, which aims to help people quickly access lifesaving treatments for COVID-19 at little to no cost. Through the Test to Treat initiative, individuals can be tested for COVID-19, see a health care provider (either on site or through telehealth), receive a prescription for an oral antiviral treatment (if they are eligible), and have the prescription filled—all in one location.

The Devastating Impact of Covid-19 on Individuals with Intellectual Disabilities in the United States

A cross-sectional study of 64,858,460 patients across 547 health care organizations revealed that having an intellectual disability was the strongest independent risk factor for presenting with a Covid-19 diagnosis and the strongest independent risk factor, other than age, for dying of Covid-19. Screening for Covid-19, care coordination, and vaccination efforts should be intense within this population.

The Impact of the COVID-19 Pandemic on People with Disabilities in Delaware

“People with disabilities have been differentially affected by COVID-19 because of three factors: the increased risk of poor outcomes from the disease itself, reduced access to routine health care and rehabilitation, and the adverse social impacts of efforts to mitigate the pandemic.” 

The Impact of COVID-19 on People with Disabilities

The report, The Impact of COVID-19 on People with Disabilities, examines COVID-19’s disproportionate negative impact upon people with disabilities in:

  1. Accessing healthcare;
  2. Accessing direct care workers;
  3. Congregate care settings and transition;
  4. Education;
  5. Employment;
  6. Effective communication;
  7. Mental health and suicide prevention services; and,
  8. The congressional, federal, and state response.

 

Health Equity Framework for People with Disabilities 

This Policy Brief from the National Council on Disabilities provides rationale for the need of an all-of-government approach to achieve health equity in the United States and our territories for the largest unrecognized minority group in this country, the over 61 million people with disabilities, and sets forth a framework to achieve health equity for all people with disabilities. Disability is a natural part of the human condition, which occurs across all age, gender, racial, ethnic, language and social groups. 

 CMS Framework for Health Equity 2022–2032

This CMS plan (Centers for Medicare & Medicaid Services) focuses on people who experience, or serve those who experience, disproportionately high burdens of disease, worse quality of care and outcomes, and barriers to accessing care. This Framework reinforces the concept that in order to attain the highest level of health for all people, we must give our focused and ongoing attention to address avoidable inequalities and eliminate health and health care disparities.

 

Additional Resources

NEW Module Just Arrived - Trauma-Informed Care. Visit our E-Learning Module Series. This series provides information and strategies for teachers, families, and paras to support the education of all students.

The Arc of Pennsylvania’s Making Employment Work course is an ACRE Basic Certification Training. In order to receive certification, participants must attend a 3 day, in-person training and then complete a self-paced, online curriculum. Completing this certification course will qualify individuals to provide Supported Employment services with Pennsylvania’s Office of Vocational Rehabilitation and Office of Developmental Programs. Our training combines lessons learned from traditional Supported Employment and Customized Employment techniques.

Arc Discovery Employment Transitions (ADEPT) is The Arc of Pennsylvania’s customized employment program. The Arc of Pennsylvania supports individuals with significant impact of disability to seek and maintain customized employment in their community. As a result, The Arc of Pennsylvania’s consultants are trained and nationally certified by Marc Gold & Associates, a national leader in customized employment, to provide Discovery, Customized Employment Job Development, and Systematic Instruction to individuals with disabilities in Pennsylvania who are seeking employment. In addition to providing customized employment services, The Arc of Pennsylvania hosts several certification courses with Marc Gold & Associates for individuals and organizations interested in national certification in Discovery, Job Development, and Systematic Instruction.

Include Me is a new model for inclusive education and gaining meaningful employment for Pennsylvania’s students with intellectual and developmental disabilities. The Arc of Pennsylvania and Include Me believe all individuals with significant impact of developmental and intellectual disability deserve equal educational and competitive employment rights. Our mission, build and strengthen the inclusive education capacity for all public-school students, and discover meaningful employment opportunities meeting Pennsylvania employee and employer needs. Include Me strives to ensure all impacted students have equal access to all aspects of life and the community throughout their lifespan.

Include Me is an initiative that was part of the agreement on final terms between the plaintiffs and the Pennsylvania Department of Education in the Gaskin Settlement Agreement. We were initially assigned to work with school districts with the lowest inclusion rates. After the initial success, we have grown in reputation among school districts. Currently districts voluntarily chose our services, which are provided free of charge to the district. In addition to our School Age services, we offer transition-age services to help teams plan a path to customized employment for students transitioning from high school.

Donation Refund Policy

We are grateful for your donation and support of our organization. If you have made an error in making your donation or change your mind about contributing to our organization please contact us. Refunds are returned using the original method of payment. If you made your donation by credit card, your refund will be credited to that same credit card.

Automated Recurring Donation Cancellation

Ongoing support is important to enabling projects to continue their work, so we encourage donors to continue to contribute to projects over time. But if you must cancel your recurring donation, please notify us.

Privacy Policy

  1. What Information Do We Collect?
    When you visit our website you may provide us with two types of information: personal information you knowingly choose to disclose that is collected on an individual basis and website use information collected on an aggregate basis as you and others browse our website.
  2. Personal Information You Choose to Provide
    We may request that you voluntarily supply us with personal information, including your email address, postal address, home or work telephone number, and other personal information for such purposes as correspondence, placing an order, requesting an estimate, or participating in online surveys.
    If you choose to correspond with us through email, we may retain the content of your email messages together with your email address and our responses. We provide the same protections for these electronic communications that we employ in the maintenance of information received by mail and telephone.
  3. Website Use Information
    Similar to other websites, our site may utilize a standard technology called "cookies" (see explanation below, "What Are Cookies?") and web server logs to collect information about how our website is used. Information gathered through cookies and server logs may include the date and time of visits, the pages viewed, time spent at our website, and the sites visited just before and just after ours. This information is collected on an aggregate basis. None of this information is associated with you as an individual.
  4. How Do We Use the Information That You Provide to Us?
    Broadly speaking, we use personal information for purposes of administering our business activities, providing service and support and making available other products and services to our customers and prospective customers. Occasionally, we may also use the information we collect to notify you about important changes to our website, new services and special offers we think you will find valuable. The lists used to send you product and service offers are developed and managed under our traditional standards designed to safeguard the security and privacy of all personal information provided by our users. You may at any time to notify us of your desire not to receive these offers.
  5. What Are Cookies?
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  6. How Do We Use Information Collected From Cookies?
    We use website browser software tools such as cookies and web server logs to gather information about our website users' browsing activities, in order to constantly improve our website and better serve our users. This information assists us to design and arrange our web pages in the most user-friendly manner and to continually improve our website to better meet the needs of our users and prospective users.
    Cookies help us collect important business and technical statistics. The information in the cookies lets us trace the paths followed by users to our website as they move from one page to another. Web server logs allow us to count how many people visit our website and evaluate our website's visitor capacity. We do not use these technologies to capture your individual email address or any personally identifying information about you.
  7. Notice of New Services and Changes
    Occasionally, we may use the information we collect to notify you about important changes to our website, new services and special offers we think you will find valuable. As a user of our website, you will be given the opportunity to notify us of your desire not to receive these offers by clicking on a response box when you receive such an offer or by sending us an email request.
  8. How Do We Secure Information Transmissions?
    When you send confidential personal information to us on our website, secure server software that we have licensed encrypts all information you input before it is sent to us. The information is scrambled en route and decoded once it reaches our website.
    Other emails that you may send to us may not be secure unless we advise you that security measures will be in place prior to your transmitting the information. For that reason, we ask that you do not send confidential information such as Social Security, credit card, or account numbers to us through an unsecured email.
  9. How Do We Protect Your Information?
    Information Security -- We utilize encryption/security software to safeguard the confidentiality of personal information we collect from unauthorized access or disclosure and accidental loss, alteration, or destruction.
    Evaluation of Information Protection Practices -- Periodically, our operations and business practices are reviewed for compliance with organization policies and procedures governing the security, confidentiality and quality of our information.
    Employee Access, Training, and Expectations -- Our organization values, ethical standards, policies, and practices are committed to the protection of user information. In general, our business practices limit employee access to confidential information, and limit the use and disclosure of such information to authorized persons, processes and transactions.
  10. How Can You Access and Correct Your Information?
    You may request access to all your personally identifiable information that we collect online and maintain in our database by emailing us using the contact form provided to you within the site structure of our website.
  11. Do We Disclose Information to Outside Parties?
    We may provide aggregate information about our customers, sales, website traffic patterns, and related website information to our affiliates or reputable third parties, but this information will not include personally identifying data, except as otherwise provided in this privacy policy.
  12. What About Legally Compelled Disclosure of Information?
    We may disclose information when legally compelled to do so, in other words, when we, in good faith, believe that the law requires it or for the protection of our legal rights.
  13. Permission to Use of Materials
    The right to download and store or output the materials on our website is granted for the user's personal use only, and materials may not be reproduced in any edited form. Any other reproduction, transmission, performance, display or editing of these materials by any means mechanical or electronic without our express written permission is strictly prohibited. Users wishing to obtain permission to reprint or reproduce any materials appearing on this site may contact us directly.